Occupational Therapy for Marfan Syndrome

We provide occupational therapy online for children, adolescents and adults with Marfan syndrome. 

We are a registered NDIS provider and use an inclusive approach to therapy, where the person can be in the comfort and familiarity of their own home.

How can occupational therapy benefit people with Marfan syndrome?

Occupational therapy can benefit people with Marfan syndrome in several ways:

1. Joint and muscle management: Marfan syndrome can lead to joint hypermobility and muscle weakness. Occupational therapists can teach individuals with Marfan syndrome how to manage their joint hypermobility by focusing on stability, strength, and alignment. They can also provide strategies to prevent joint dislocation or subluxation. Occupational therapists can create personalized exercise programs to improve muscle strength and flexibility, as well as provide adaptive equipment and assistive devices to support daily activities.

2. Energy conservation: Marfan syndrome can cause fatigue due to increased effort required for movement, joint instability, and cardiovascular complications. Occupational therapists can assess individuals’ daily routines and recommend energy-conserving strategies to maximize independence and prevent unnecessary fatigue. They can suggest adaptations to tasks, such as using proper body mechanics, pacing activities, and incorporating rest breaks.

3. Functional adaptation: Occupational therapists can help individuals with Marfan syndrome adapt their activities of daily living to accommodate physical limitations. They can assess and modify the home environment to enhance safety, accessibility, and independence. Occupational therapists can recommend assistive devices like adaptive clothing, reachers, long-handled tools, or orthotic devices to compensate for physical limitations and promote participation in desired daily activities.

4. Pain management: People with Marfan syndrome may experience chronic pain due to joint instability, muscle weakness, or spine deformities. Occupational therapists can provide pain management techniques, such as heat or cold therapy, splinting, manual therapy, and relaxation techniques. They can also teach individuals strategies for ergonomics, body mechanics, and joint protection to minimize pain during activities.

5. Psychosocial support: Living with Marfan syndrome may present various psychosocial challenges, such as body image issues, anxiety, and depression. Occupational therapists can offer emotional and psychological support to help individuals cope with these challenges. They can provide strategies for stress management, relaxation techniques, and engage individuals in meaningful activities to enhance overall well-being.

Overall, occupational therapy aims to improve the quality of life for individuals with Marfan syndrome by addressing physical, emotional, and environmental factors that may impact their daily function and independence.

Services for children, adolescents and adults

We have occupational therapists who work with  children, adolescents and adults, and we have therapists who have experience with Marfan syndrome. Read more about our therapists here.

Assessments for Marfan syndrome

We are able to provide many types of occupational therapy assessments online, including Functional Capacity Assessments (FCA) and reports required for the NDIS. Please see this article for more information on assessments we can provide.

NDIS registered provider

We are a registered NDIS provider and work with self-managed, plan-managed and agency-managed clients. 

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If your are an NDIS provider or support coordinator we can provide reliable occupational therapy for clients with Marfan syndrome in any location. Refer a client and we’ll connect you to the right clinician. 

Is online occupational therapy effective?

Yes! A growing body of evidence shows that online delivery of therapy can be as effective as face to face. Online therapy has many other benefits too, including being convenient and accessible for people in regional and rural areas.  

How does online occupational therapy work?

At Umbo online therapy is not just zoom plus business-as-usual. It’s much more diverse than simply videoconferencing. Umbo therapists provide an individualised approach to each person, using the latest evidence, and a variety of technologies and engagement techniques.

Umbo champions person-centred therapy. It means the person and their family/support people leads the conversation. We believe that the most effective therapy occurs when support is given in the environment where the person lives, learns, works or plays. Therefore we work with the family, and teach skills to you or to other supporters. This means you’re achieving real-life goals, rather than just achieving goals in a clinic.

We are a certified social enterprise helping Australian families access allied health services.